| Low-dose Aspirin Use in Sturge-Weber Syndrome Survey | ||
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Dr.
Anne Comi at Kennedy Krieger Institute
in Baltimore, Maryland, USA is the
principal investigator of this study.
The Johns Hopkins Institutional Review
Board has approved this study. |
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We
are conducting this research because
of uncertainty whether low-dose aspirin
is helpful for Sturge-Weber Syndrome
(SWS). You are invited to participate
in a survey. This research study is being done by Dr. Comi and other faculty at the Hunter Nelson Sturge-Weber Syndrome Center. People with SWS who have and have not taken low-dose aspirin are invited to complete this survey. The survey is web-based and no names or other identifying information, including your IP address, will be collected. With your help, we hope to understand how better to treat patients with Sturge-Weber syndrome. It takes approximately 15-20 minutes to complete the study. There are minimal risks and no medical benefits for participating. Please do your best to answer the survey below as completely as possible. You have the option to skip any questions that you do not want to answer. By answering the questions in the survey and submitting it, you are giving implicit consent to participate in this study. |
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